So I was expecting a decline in performance today, first day off Prednisone. Last time
it was like someone had drained all my energies. Today, 2 days after chemo, I’m
okayish still. Had a huge 4-6AM
insomnia/starvation/dehydration moment and was up for a while, and I feel the
weird, but not the flu like symptoms (Pretty sure it’s the Xometa now which I
get next week so we shall know if that is the culprit). So, I took it easy after a long day yesterday and slept in. I
even made the kids lunches for Skip during my early rise cereal craving to try to help his
sanity.
We went to the zoo yesterday, as I knew I would feel good
the day after chemo, I always have. We brought my mommy stroller and that
helped a ton, and gave little Alana and Isla some chill time too when they
needed it. The park was clearing by the time we got there and 3 hours of fun
was to be had with my two girls, two nieces, mom and sister. I posted a ton of
pictures today on facebook, yes, I even felt well enough to tote my camera
around!
We came home and we ate leftovers from what I had made the
day before and got everyone to bed early. Skip and I watched a movie and both
laughed uncontrollably, keeping us awake and cheerful. But then when the movie ended, it hit again,
those darn emotions. It was Paris.
See the movie referred a few times to Paris and Madison and
I earlier that day had talked about Mexico and if we would still go. I told
her, I’d probably rather go to Paris, and Rome as Italy was by far one of the most
amazing places I had ever been to. I told her that was my dream at some point,
to take each girl to Paris when they graduated high school. She said she knew
people that did that and we quickly changed the subject as I think we both
started getting teary eyed.
So after the movie I blurted out, “lets go to Paris…” and
skip starts looking at plane fares and I start tearing, more like gushing.
Streams of too many emotions came pouring down my face, as they are now, and I
couldn’t even tell him why and it was awful because my head went from Paris to
way too many other places - fast. Whew. So I cant write about this anymore.
I blame Prednisone. That is my thing right now. It's all Prednisone's fault. hehe.
Now Alana is home, we are going to do homework together. I
am very thankful for another day. I played with pictures, I caught up on some
to-do’s I wanted to do, I even juiced a couple of jars of good stuff, and I
took out some meat for tonight’s dinner! There is a ton to be thankful for, I’m
trying so hard to stay positive, and just hope that this cancer they say I have
had for almost 8 months now has gone. I can’t explain it now, but the closer I
get to those scans, the closer I feel to it being reality. I got my blood work
from Tuesday earlier and my liver numbers have come way down, still high, but
one was actually normal! There were a few things off, but they tend to stay off
when I’m on chemo and they’re like .1 or .2 off, so we will just say normal.
Healthiest sick person you know… always.
Let me just say it again if I haven’t said it enough, and
especially since I’ve had a rough few weeks, THANK YOU. I cannot tell you how
many people daily reach out, and not always the same people even, just to say
“hi, we are thinking about you.” It truly makes a world of difference. You
don’t have to have any clue as to what I’m going through and I won’t pretend to
understand yours, but I do know through the storms of life, surrounding
ourselves with people filled with positivity and love, and having an army of
prayer warriors, saints, angels and a God who I don’t always understand watching our back,
makes this storm a little less scary. I’ll never be able to let all of you know
how much we love our team, but we do.
And to my husband, who I’m sure doesn’t read my blog except
on occasion, he’s beyond amazing. I cannot thank him enough for the love,
patience, support and care he gives to me and these little girls every single
day. He works, serves, cleans, shops, drives, along with 8,000 other things on his daily to do,
and even deals with his own emotions. He carries more than I could ever imagine
putting on one person. Skip, you’re the best and I love you more than you know,
I can’t wait to be better so we can do this next part of our life the best way, the most right newer normal way.
Ah, more tears coming, so I’m done. Battlefront has
magically come on, so I guess homework was super easy. Sweet. Love and hugs.
Muah.
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