After the weekend’s end, I crashed. I think it was the
moment after I spoke to Tony. It was the last thing I “needed” to do, and
closure came. My mind came to a rest and we headed home. No one ate dinner,
just snacked on the feasts and meals I had prepared for the car. Convenient. I
asked for a movie night so we got ready and watched half of it, planning to be
finished at 8:30 and head back to school. There seemed no reason for them to
continue being withdrawn wince we weren’t quite sure where all we would have to
be this week until my children sit in my lap with sadness. “But mom, we really
didn’t get to do family time this weekend… I don’t want to go back to school…”
You can imagine and I’m sitting there now with a conflicted heart.
We all agreed upon one more day and then they would go back
to school. I emailed her principals and everyone was immediately on board. I
talked with Skip because I still was not sure I felt right about sending them
back now. I told him that there was a part of me that thought if for some
reason I go badly downhill, I will look back and regret not pulling them for
two weeks. Or, if I use that two weeks now, I won’t be able to later. My mind
was racing.
Then I hear foot steps. “Alana you need to go back to bed
honey…” I walked her into her bed, gave her the 50th awesomest hug
for the night and I look at her. Her eyes are welling up with tears and I think
in my heart I fear whats next. She says, “mommy. I’m scared.” I pause. We DID
just watch Jurassic Park 2, but this has nothing to do with it. I said
something along the lines like, honey, mommy is scared too. We are all really
scared. But I want you to not let fear steal your joy. We are making the most
out of every day and I don’t want to see the smile disappear. I tickeled her and
likely gave some more wisdom I can’t remember because at this point we are
bawling. I am finally able to remove myself and close the door.
“Mom, come here.” It’s my Madison. I sit on her bed and we
talk a little bit about school and how the kids there keep her positive. That
it truly is a big distraction and she feels good there. She has a few amazing
frineds in that little 7R team that she tells me stories about every day. One
in particular is a boy. She sad last week that she didn’t even notice she was
sad, but he did. That he started saying something about square and did
something crazy and she laughed. And he acted if mission accomplished. She also
told me about friends who randomly text her with hearts or people that she
really does not even know that stop her in the halls to say something sweet or
give her a hug. I cannot tell you as a mom what that means to me. Home is
amazing, but there are also days that home is very sad, so I am blessed and
grateful to have such an amazing place for her to be at. That goes for both of
my girls.
Amazingly I slept pretty well and around 6:30, God called. I
do NOT love the cold but I went anyway hunting warm socks, hot tea, blankets,
snuggly robe and my thick blankie, me and God sat in the living room. I felt
His presence the moment I sat down. So we talked. Really I just wanted him to
speak through his word. I had just put down a little daily promise book I had.
“Whatever your hand finds to do do it with all your might.
Diligence keeps going while frustration gives up. Diligence says, I can do it,
while defeat says, I can’t.” I find out
a little further that the first line is Ecclesiastes 9:10. So that is where we
start.
I opened my bible and began to read the verses before and
after. I have to admit, I was confused. I didn’t really understand at first why
God would want me to read this. Until I dug a little deeper.
Go eat your food with gladness, and drink your wine with a
joyful heart, for it is now that God favors what you do. Always be clothed in
white and always anoint your head with oil. Enjoy life with your wife, whom you
love, all the days of this meaningless life that God has given you under the
sun – all your meaningless days. For this is your lot in life and in your
toilsome labor under the sun. Whatever your hands find to do, do it with all
your might, for the grave where you are going, there is neither working nor
planning nor knowledge nor wisdom. The race is not to the swift, or the battle
to the strong, nor does food come to the wise or wealth to the brilliant or
favor to the learned, but time and chance happen to them all.” Ecclesiastes
9:7-12
The notes below were 7-10: Considering the uncertainties of
the future and the certainty of death, Solomon recommends enjoing life as God’s
gift. He may have been criticizing those who put off all the present pleasures
in order to accumulate wealth much like those who get caught up in today’s
race. Solomon asks, “what is your wealth worth anyway?” BECAUSE THE FUTURE IS
SO UNCERTAIN WE SHOULD ENJOY GODS GIFTS WHILE WE ARE ABLE.
I lost my breath. God’s gifts are my babies.
I reread it all three times, maybe more. God favored what I
was doing and I thanked him. I told him I likely could not always be clothed in
white, but I would be grateful every time I put clothes on. “Enjoy life with
your wife…” I’m sure is for Skip, but in my mind I just changed it to
“husband.” Then I got to meaningless days. I do not feel they are meaningless
at all, but after reading it a few times, I realized it’s all meaningless. Being
together, loving one another, giving, that is meaningful in life. Not this race
to the finish, or planning every single little thing, God is in control, let
go. He was telling me, it’s okay to spend a few weeks doing fun things. I could
feel it, I could hear it. But then I read those notes and that was it for me. I
started crying. I do enjoy life. So much, and because the future is uncertain,
my babies are not going anywhere.
It’s funny, because I kept telling myself I needed to pray
about whether or not to keep them out for a few weeks and Katie my neighbor, a
now homeschool mom, keeps popping in my head. She was so funny the other day
when we said we were pulling the kids for a while. She was convinced they
wouldn’t miss a thing anyway and would learn more from us and world experience.
She was right. I never got that chance to pray it, but the Holy Spirit did. And
my answer today is underlined in my bible, because I’ve heard God speak to me
and give me answers before but I’m not sure there has ever been one like this.
Please, this weekend if you’ve followed any part of my
story, God has been showing off. You may think it’s coinicidence, I promise you
its not. The chances of me turning to this exact piece of scripture today is
like winning that billion in the lottery last week. We are thanking God non
stop. We DO NOT have to drive to MD Anderson, the doctor here in Atlanta just
happens to be affiliated with MD Anderson and does weekly Brain Tumor Board
sessions where the doctors collaborate. We were able to get in touch with
Valerie Harper’s doctor in L.A. and he was consulting with a breast surgeon and
will be calling me today. I don’t even have to FLY THERE! My doctor here knows
of him and told me to have him call her if I liked. Valerie Harper’s husband called
me by phone and he said THOUSANDS of people have been reaching out. He said it
was like nothing he had ever seen – off the charts. He gave me so much
information, including every doctor, every medication, every herbal and
alternative medicine she has done. And at the end he gave me his cell to call
any time and “God bless.” Skip reset my wedding band that had broken two years
ago and the setting I wanted was told to be out, and while the man was looking
for one in another store, I happened to find it in a case we had missed? I ran
shouting THIS IS IT and he said there was only one other one in the system, and
it wasn’t at this store. Then while praising God on the steps of the very first
church he ever took me to, a man across the street starts belting in the most
beautiful voice off his little white house porch, “Bless the Lord oh my soul,
oooh my soul, worship his holy name…” in which Skip turns me around so I can
see and I start singing too. One of my most favorite songs and he gave me the
ring.
My heart is RACING just telling you that, and that doesn’t
even come close to the things I have seen this weekend. Our pastor pulled us up
on stage for the congregation to pray, we have a crazy awesome team Nadine, we
have warriors lifting us literally around the world, we have blog followers and
friends that drop anything to help us in a heartbeat. We love you all, and most
of all we love and adore our big wonderful amazing family. They do every one of
those things and together we are all enjoying our days together, every one not
meaningless, but a blessing, a joy. Don’t lose hope. Keep your eyes upward and
if you don’t believe in God, go back to 2013 start reading, and call me. I
promise you, he is real and alive today, waiting for you to give it up. Just
pray.
My God I love you...I want to take this away for all of you.
ReplyDeleteWhen I was sick I met someone who also was going through a medical crisis.
Mine was the "drunk Irishman"
Hers was "kitty boo boo"
We used to say "Oh, Is the Irishman at it again? and yell at me "stop it, you drunk.
Since I know you love naming things, what is yours? "Pootie?"
"Pootie knock off!" We don't want you...so go away!!!!"
Love you ,
Suzanne
love......................
ReplyDeleteYou are truly amazing and inspiring! Many many prayers for you and your beautiful family!!
ReplyDeletePraying for you all
ReplyDeleteWhat an awesome testimony you are. With all of the Valerie Harper posts this weekend, I have finally found your blog. I have seen the Team Nadine in full force all over social media now for some time. You are one amazing individual. I hope to be half the woman, mom, and wife that you are girl! You got this. Praying.
ReplyDeleteNadine,
ReplyDeleteYou may not remember me but I remember you :) I met you years ago through Katie S. at a CPR class on your street. I have been reading your blog and constantly praying for you and your family. The Lord's hand in your life is so evident and he has used you big time in mine. Thank you for being such a light for Jesus. I watched my Dad fight for his life but mostly fight to proclaim Jesus in his circumstances with ALS and it was amazing. You are amazingly doing the same. I am praying for many to come to a saving knowledge of Jesus because of all of this and I am praying for ultimate healing! Keep up the fight!
"I have fought the good fight I have the race, I have kept the faith." -2 Timothy 4:7-8
-Katie Henley
I was at that class too! Sorry, I totally forgot about that memory with you all!
Delete