All part of grander plan

All part of grander plan.

Well lets try one handed typing before the letters LMNOP are going to spawn a seizure. That is all we need on the plane. So I guess your not reading this for entertainment purposes, but for results.

Ive been praising God, so thankful, as the systemic results were immediately given to us. It was so cool to get numbers same day. Dr. K drew about 20 viles of blood, some to send away, some for comparison purposes, and some for Tuesday. Then they took 22cc of CSF splitting them up for testing. Never even dreamed theyd come back but the preliminary the LM had continued to be gone. No cells are present and my pressure is perfect. Then they say my ALT is 18! What!!! That is by far my lowest my liver enzymes have been. Tumor Marker say no way, but with God nothing is impossible. My TM was the lowest by.3 since we started this ordeal, but the most significant change was in 9 week of taking XELODA they went from 300 to 53! FIFTY FLIPPIN THREE!! Normal is 20 but we will take it!

We left in shock and went off to a brain MRI, 90 minutes early but whatever. The next morning I woke up praising God, praying for friends, and for the scan. 9 AM couldn’t come soon enough! We would get the results and devise a real plan!

Then I heard four heartbreaking words, “your scan is worse.”

Okay, worse how did’nt dawn on us until this morning but the things we discussed the day before were now wihout a doubt the plan.

1.     labs in Atlanta weekly

2.     fly to LA once a month

3.     all scans will now all be done in LA

4.     I will start a hormone therapy asap called

5.     Xeloda is dropped or cut down

6.     Start Everlimus chemo pill that should get into brain better than xeloda

7.     Two antiflammatory drugs one herbal and another for the edema in the brain

Good news is that we don’t have to live there for now. We talked about a study but doesn’t benefit me but I want to do this to help them understand science.  That is all I can say there. 

“This is where the healing begins, this where the healing starts, when you come to where your broken within, the light meets the dark.” Just played on my iphone. May my heart not doubt. My field wilted and I took several steps back. Its still straight, but saddened. I know there are a million ways we could’ve done it but so far we are 17 months closer to a healing when all said impossible. My heart has changed over the last 5 weeks. I am more peaceful. Not wanting to be so controlling but let some things go, I must. I watched Bad Moms on the plane and there is a lot of truth to storyline. How often do we want that perfect birthday party, class cupcakes, the perfect outfit for picture day? With all we have going on people are lucky if we rsvp!

We are home now and slept until noon. Guess im wiped out. Have lots and lots of calls and appointments, research, and scheduling to work on so I’ll check in later. Lots of drugs to order! And no not those kind though there is an uber type app that had us in awe.

So too tired to do this. Love to all. Thank you for continued prayers!!!