Two more opinions and in less than 24 hours.
Phew! That was a journey!! Now we have a multi doctor conclusion on how to
continue treating this and killing it so I can see my babies graduate. The odds
are not looking good scientifically but we know our God is bigger than odds.
So.
The MRI didn't look good. One doctor always refers to bad news with
preceding it with "if I were your sister..." I have swelling where we
did SRA. We are tackling that with baby steroids and another round of 14 days
on and 7 days off chemo. I have several new tumors in my brain and cerebellum
area all tiny ranging from 2-5 mm. For now we hope that the timing was not
enough to have a scan before Xeloda could work. We will be taking a closer look
at my counts, markers and vitamins. She took enough blood today to fill a milk
jug, okay maybe a coke bottle but just seeing it made me feel yuck.
I still have sores, a sore throat, no fever, and a rash that appears
to be going away. They’ve upped my Keppra to help with the seizures and learned
that I’m likely having focal seizures! Love when we learn something new!
We had a good day. I only cried once and that was when I gave Arion
her cheese-it gift, and realized in the very room she started this journey as a
killer awesome nurse and friend by my side. Gave Troy a gift and shocking, he
had one for me, unicorn Christmas cards!!! Stop it, love my ACC family, Cumming
and Tower. The funny part was that I got all the chemo nurses to go up to Skip
and tell him happy 40th Birthday. Hehe. I think he will adjust soon!
So recap:
Pet scan from Nov. 21 worse liver and bones mets
MRI brain from yesterday had swelling around the radiated spot with
clustering and several new tumors, tiny.
We will continue Xeloda 14 days on 7 days on unless side effects
become unmanageable.
Upping seizure meds and adding baby dose of prednisone.
Not pretty, but I’m a woman who doesn’t quit.
YOU ATR WONDERFUL! and Im with you!, with Love!
ReplyDeleteYou are a warrior woman! Keep up the keeping up!!
ReplyDelete