It's been a long time...

My, my it has been a long time.

There’s so much to tell you about and I don’t even know where to start. This is kind of funny

because it’s dictating every word I say and not all are heard.

Let’s see if that works for you… (Skip is editing, but just a little. J)

No, not really but we’ll go with it.  I threw up this morning - that was joyful. I had two seizures in a day it - I love this but it is going to be harder than I thought. I had a lapse in memory and I have no idea what to say. You can fill a boy with whatever you want. (Skip decided to leave that line in just because it sounded funny. Not sure what she was trying to say) Oh!!! Several falls… because I’m just a stubborn little brat and I want to go where I want to go. I hate sitting on the couch all day long.

My seizure meds are maxed out and make me very dizzy. I find it hard to even function during the day when I’m on them so we’re lowering them a bit. Skip had to carry me to the bed (this morning) and I’m not the lightest person on the planet but I am now lighter than I was!

We are struggling to find balance in our home and with the kids. Would like to go to San Francisco and drive the coast down like we did last time. This is harder than last time. Gee whiz… The thought of doing this - I thought it would be good but hmm, I am I’m struggling to get the words out.

I’m going to take a break and nap a little. I have to do what I have to do. My eyes are doing my eyes are doing healing and feeling dealing Giling (edit: jiggling) yay. I have a midline shift of my brain and that’s not good. So we’re just going day by day...

I’ll be back in a little bit. (yes, skip is making me eat graham crackers.)

Oh, oh me and the girls tried to hide a fall (from Skip) and it was so substantial that he busted us. We said we were exercising on the floor and he knew we were lying. Seven falls in the in the last eight months. Some were more substantial and some not as much. We just never know.

There were two… I have sat here for 15 minutes trying to figure out what I’m supposed to write next. So frustrating.

There are three doctors who have basically given up on me. I hadn’t heard of that before but have now and they would’ve given up on me a long time ago had it not been for Dr. Kesari. And I’m not say that is the one that will cure me - we don’t know anything. 

I don’t expect to be here much longer. I don’t expect to be here through the summer. Lots of tears and lots of emotion. But lots of family time. And who is to say that I won’t my get another year or 5 years - only God will know and I trust in Him.